Saturday, April 14, 2012

Missing Home

The day didn't start well after a very very difficult night, with Madam unable to settle. She ended up squishing in to my bed with me which seemed to comfort her, but she was dreadfully uncomfortable, in lots of pain and inconsolable. One of the nurses promised to sneak me some toast, but she set the fire alarm off using the toaster, so I took advantage of the racket to make a cup of contraband coffee in my cupboard.

The cardiac team did their rounds and said that lying flat would not help either the pain or her heart function, so have suggested she remains sitting upright through the night. Today's ultrasound showed that the fluid on her heart has not reduced and the fibrous matter is causing some concern. A decision will be made on Monday whether to transfer her to Southampton for surgery to drain everything.

We have been looking forward so much to seeing the boys all week and today they came in to visit. Madam was overjoyed and very chatty. She was definitely quieter today, and her temperature has spiked a few times, but seeing her brothers was a tonic for us both.

I just want to say thank you to all of you whose messages of love and deliveries of cake, salad, pyjamas and bunny ears have made this a little more bearable. Wishing it won't be long before we are back in our village and doing ordinary things with our extraordinary friends. We miss you.

1 comment:

  1. Just wanted to say that we are still thinking of you and hoping you get home very soon xxx

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