It's 1am and I've just left my baby. It's been a long day.
This morning the consultant cardiologist did an ultrasound on her heart. Because she is hooked up to all these drips, they wheeled the machine into her room so we didn’t have to move her. The MRI scan and chest x-rays yesterday showed that her heart was enlarged and there was something on her lungs. The ultrasound confirmed that there is quite a lot of fluid in both lungs and around the heart. This is apparently another marker that her system is fighting something virulent, along with her extremely elevated white blood cell count.
Although she rallied yesterday afternoon for an hour or so and sat up and was quite chatty, she was asleep and unresponsive most of today. She vomited a lot this morning and won’t eat, so was on IV fluids. She is being treated with antibiotics for viral meningitis as a precaution.
This afternoon she deteriorated rapidly and was struggling to breathe. The fluid in her left lung increased. Her temperature suddenly elevated, despite all the medication, as did her blood pressure and heart rate. I called for help and they gave her oxygen and more meds. She was moved to Intensive Care around 7.30pm. She is now more stable and there is a precautionary ventilator next to her bed. She has had local anaesthetic applied to her chest and side in preparation for any emergency drain they might need to do in the night, although they'd like to avoid it so they can do it more easily in theatre tomorrow. It is likely she will be put on a ventilator for a while. She is hooked up to lots of machines and looks very small. They have found me an empty room for tonight, but it is miles from her in the old part of the building next to the offices, but at least there's a bed. They wouldn't let me stay and sleep in the chair next to her.
It was very hard to leave her.
We are hugely comforted by all your lovely messages and thoughts. Thank you and keep the Love coming this way.
Dear Maeve I don't know what to say. I couldn't believe what I read. All my love & prayers go out to you & Ed & Your beautiful baby girl (yes, Liberty is still a baby to me) & all her brothers. I am so, so sorry that you are in this nightmare that we all hope will never happen to us. Love you. Meg xx
ReplyDeleteSending my prayers as well . . .
ReplyDelete--Meira
My son had viral meningitis many years ago. It's very scary. Thoughts are with you
ReplyDeleteSending my prayers...may your daughter get well very soon.
ReplyDeleteMy eldest got pneumonia from chicken pox when she was 21-months old ... I know the feeling of your little girl there, without a good diagnosis and without knowledge of where to go from here. Prayers coming your way. Psalm 46:5 helped me (good ol' Gideon Bible, in the drawer at the hospital right where I needed it!) "God is within her, she will not fall; God will help her at break of day."
ReplyDeleteThinking of you. Even my non commital hubby was moved to hear of your current plight. I hope things get better overnight. XXX
ReplyDelete