Today has been a funny sort of day - a bit up and down. Sorry for worrying everyone with a late update from yesterday, but the internet connection is not always reliable.
Madam had the usual ultrasound this morning which showed little change in the heart but the fluid on the lungs looked hugely better, so the drain was removed. It was a bit horrid for her, and as she had been on nil by mouth since she woke in case emergency surgery was required, we had a very late breakfast of chocolate Easter egg.
Had a lovely visit with Number 1 and Madam slept while I caught up with my oldest boy. But the cardio team were concerned that she was very sleepy, so another ultrasound was done and showed a huge mass over her right lung. Things got a bit panicky with lots of hushed phone calls being made to other departments and I was told the drain would have to be put back in. All I could think about was that hideous time in Intensive Care and putting her through it all again. They called for a chest x ray to confirm what was going on and it showed that the mass was actually her stomach which has become terribly distended. (Probably all the chocolate.) Relief was huge, as you can imagine, although I am considering buying the cardio doctor one of those Dorling Kindersley books with diagrams labelling parts of the body. Poor little girl - she has been very distressed since then, tired and in pain. When she gets out of here, I'm going to be less strict about things like broccoli and teeth brushing and feet on the sofa. Chocolate is going to feature more regularly and new shoes. She deserves a lot of spoiling.
This is not easy. And the Unidentified part of the ULI remains Unidentified. Not sure even Dorling Kindersley can help. Thanks for all the love - need it tonight. Will try and be more cheery tomorrow and will tell you about the ultrasound machine I nearly blew up this morning. Just off to my cupboard now to make a coffee before her meds are due in an hour. 'Night all.
Just come across your blog by chance. I wish your daughter lots of courage along with you and your family. I can't imagine how painful it is for you and hope she running around doing things she should be soon. Wishing you a happier time ahead from a fellow mum, best wishes Laura x
ReplyDeleteIn my humble opinion as an anonymous mom across the world who enjoys your blog, there's no need for you to, "try and be more cheery tomorrow," unless you really want to for yourself and/or immediate family. You are amazingly cheery (at least in writing) in all of the circumstances! I suspect (and hope) that your friends and extended family don't want you to try and be more cheery for their sake; they just want you and your little one to be okay.
ReplyDeletePersonally, I would have been tempted to smack the doctor with a DK book. Or an Easter bunny.
Praying for your brave little girl and her brave mommy.